A Love to Remember: A Young Woman's Journey Caring for Her Partner Through ALS
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This week, Heidi McCann shares her story and her experience caring for her partner Curtis after he was diagnosed with ALS at 25. Heidi shares how she and Curtis met as teenagers in Vermont and maintained their relationship through college before Curtis began exhibiting symptoms of ALS. When he was diagnosed, Heidi left her job to care for Curtis full-time. She moved with him to his small hometown to be closer to his support system and cared for him over the next year as his condition deteriorated. Heidi and Curtis married 22 days before his passing to declare their commitment to one another.
After Curtis' death, Heidi found new love and purpose, going on to write a book about her caregiving journey of living with and preparing for the death of her partner from ALS. She married again and became a mother of four children. Heidi also now cares for her own mother, who has Parkinson's disease. Throughout the episode, Heidi emphasized the importance of self-care for caregivers and making future plans for support systems. She shares lessons learned from her extensive personal experience of caring for a terminally ill partner through the challenges of ALS.
About Heidi:
Born in Hartford, CT, Heidi Erdmann Vance McCann graduated from the Loomis Chaffee School, where she discovered the power of words. Observing humanity from a young age, her high school years shaped her voice and leadership skills. At Middlebury College, she refined her writing and athletic prowess. After working in development and coaching tennis, she cared for her boyfriend with ALS, ultimately founding a nonprofit in his honor after his passing at age 26.
Over time, Heidi remarried and earned a MALS degree with a concentration in creative writing from Dartmouth College. She returned to the development field at Loomis Chaffee, where she currently works and enjoys tutoring. Living in Simsbury, CT, with her husband, Paul, and their four children - Martha, Ava, Caroline, and James - along with their dogs, Bruin and Bauer, Heidi treasures family time. Setting aside an hour daily for physical activity, she often finds inspiration for future books during this time.
Confessions of a Reluctant Caregiver
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