Confessions of a Reluctant Caregiver

Natalie Elliott Handy and JJ Elliott Hill

The Confessions of a Reluctant Caregiver podcast offers a candid, unfiltered space to confess the good, the bad, and the ugly of being a caregiver through storytelling, guest interviews, and information sharing. JJ & Natalie are a dynamic duo of sisters supporting their mom living with Parkinson's and a husband who survived cancer. Along with their guests, they discuss their shared experiences in caregiving. Viewers and listeners alike will relate to our reluctance, be affirmed in their ability to be caregivers and gain the courage to confidently step out of the shadows to express their own needs. You are sure to laugh, cry, and everything in between but in the end, all will leave feeling better for the journey and part of the sisterhood of care. So grab your favorite guilty pleasure, and let's get to confessing!

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Shining a Light on Caregiving Youth: Insights from the "Hidden in Plain Sight" Series
05-09-2024
Shining a Light on Caregiving Youth: Insights from the "Hidden in Plain Sight" Series
In this wrap-up episode, we discussed the "Caregiving Youth Hidden in Plain Sight" special series, a collaboration between JJ and Natalie and My Care Friends CEO Todd Keitz and Katie Seymour (VP of Programming and Community). We were all amazed at how eye-opening it was to learn about the challenges faced by young people caring for family members with disabilities or illnesses. We highlighted the wisdom and resilience shown by many of the youth caregivers featured while acknowledging the need to support those struggling.In this episode, we underscored the vital role of policies, programs, and community coordination in identifying and assisting youth caregivers, drawing inspiration from successful initiatives in the UK. We stressed the ongoing need to raise awareness and provide resources to connect youth caregivers with the support they need. We urged our listeners to visit the podcast's website, where they can access the full series and contact information for the various organizations featured. We aim to create a centralized hub of information, empowering and assisting this often-overlooked population.We also discussed the hidden nature of many caregiving programs and the challenge of self-identification among youth caregivers. We discussed ways to help overlooked youth, including a broader focus beyond the US, and the significance of awareness within the community, including schools and teachers.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Strength in Sisterhood: Alia and Nahla's Inspiring Tale of Resilience and Responsibility
03-09-2024
Strength in Sisterhood: Alia and Nahla's Inspiring Tale of Resilience and Responsibility
We are honored to hear from two extraordinary young women, Alia and Nahla Ahmed, who have been caring for their mother since the ages of 10 and 8. Their story is one of resilience, responsibility, and the unbreakable bond of sisterhood. Alia (16) and Nahla (14) candidly share how their lives were upended when their mother suffered a debilitating polio relapse amidst the stress of moving their family. With no other relatives nearby, these remarkable teens became their mother's primary caregivers, tackling everything from helping her walk to managing the household. Their dedication and maturity beyond their years are truly inspiring as they navigate the challenges of balancing schoolwork, social lives, and the ever-changing needs of their beloved mother.Throughout their journey, Alia and Nahla have faced misunderstandings from teachers and peers who fail to grasp the full scope of their caregiving responsibilities. Yet, these young trailblazers refuse to be defined by their circumstances, finding solace in the support of organizations like Australia’s Little Dreamers and the power of their unbreakable sisterly bond. Their story is a testament to the strength and resilience of caregiving youth, hidden in plain sight, and a reminder that these remarkable individuals can thrive with compassion and understanding.About Alia:Alia Ahmed is 16 years old and has been a carer for her mother since she was 10, following her mother's polio relapse. Initially, she helped her mother walk before she got crutches. Now, Alia assists with appointments, cooking, cleaning, and providing overall support and companionship.About Nahla: Nahla is 14 years old and has been caring for her mother since she was 8. In late 2018, Nahla, her sister, and her mother left their family home due to domestic violence. Shortly after, her mother experienced a polio relapse, initially undiagnosed, which required Nahla and her sister to help her walk until she received crutches. At home, Nahla and her sister assist with cooking and cleaning to make things easier for their mother.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Navigating Younger Onset Dementia: Insights from a Youth Advocate Olivia and Patti from Lorenzo's House
29-08-2024
Navigating Younger Onset Dementia: Insights from a Youth Advocate Olivia and Patti from Lorenzo's House
This episode highlights the impactful work of Lorenzo's House, supporting youth and families dealing with younger onset dementia. Featuring Olivia Compton, a 15-year-old youth leader, and Patti LeFleur, who leads the organization's youth programming, the discussion delves into empowering young caregivers.Olivia shares her journey, explaining how she found support and community through Lorenzo's House after her father was diagnosed with Lewy Body Dementia. She describes the transformative impact of the organization's "light club" groups, which provide a safe space for young people to connect, share experiences, and learn mindfulness techniques. Patti elaborates on Lorenzo's House's three core programs - the match, clubs, and youth summit - all aim to combat isolation, build alliances, and drive dementia justice. The discussion highlights the organization's commitment to centering youth voices and experiences and empowering young caregivers to advocate for change.Olivia's wisdom and resilience shine through as she offers advice to other youth navigating the challenges of having a parent with dementia. The episode underscores the critical need to support caregiving youth, who often face stigma and struggle to find resources tailored to their unique experiences. Lorenzo's House emerges as a beacon of hope, providing essential services and fostering a growing community of young advocates determined to make a difference.About:Olivia:Olivia, a 15-year-old 9th grader, is a vital part of Lorenzo's House. After her father's Lewy Body Dementia diagnosis, she found community in the Teen Light Club and served as a Youth Lead at the 2023 and 2024 Youth Summit. Olivia leads mindfulness sessions, openly shares her story, and warmly welcomes others. A talented pianist, cellist, and choir singer, she enjoys video games, reading, crafts, and anime. Passionate about helping peers through similar challenges, Olivia cherishes the connections and friendships she's built at Lorenzo's House.Patti: Patti is the former carepartner to her mom, Linda, who had younger-onset dementia - and a former elementary educator of over 10 years. Patti designs and leads our youth programming with intentionality, knowledge and love. Her capacity to connect with family members through lived experience and profound generosity of spirit sets the tone for how Lorenzo’s House shows up for families. Patti has a Masters Degree in Instructional Leadership and is a Certified Dementia Practitioner, has spent countless hours volunteering with people living with neurocognitive disorders, and as a community educator for the Alzheimer’s Association.Social Media: Website: https://lorenzoshouse.org/Facebook: https://www.facebook.com/lorenzoshouseofficial/Instagram: https:Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Embracing Care: The Inspiring Resolve of Young Carers
27-08-2024
Embracing Care: The Inspiring Resolve of Young Carers
This week, we’re shining a light on the inspiring stories of two young caregivers, Aaliyah and Samiha, from Canada. At just 14 years old, Aaliyah has been caring for her younger sister with autism her entire life. She shares how she supports her sister's social interactions, helps with schoolwork, and even shares her passion for rock climbing. Aaliyah’'s courage in the face of such responsibilities is inspiring. She found an outlet in the sport, using it as a way to channel her energy and reduce stress from the added responsibilities of caregiving.Samiha's story is equally powerful. She began caregiving at the age of 11 when her mother was diagnosed with ALS. Now 24, Samiha continues to care for her mother, who is on a ventilator and uses eye-gaze technology to communicate. Samiha describes the challenges of being a "sandwich generation" caregiver, caring for her mother while also supporting her younger sister. She credits the young carers program through Hospice Toronto for providing validation, support, and leadership opportunities that helped guide her through those difficult years.Both Aaliyah and Samiha emphasize the importance of finding community with other young caregivers who can truly understand their experiences. The young carers program gave them a space to be "normal kids" and build connections with peers facing similar circumstances. Their stories highlight the resilience, compassion and leadership skills that often develop in young caregivers, despite the challenges they face. This episode is a powerful testament to the strength of the human spirit in the face of adversity, and the crucial role that community support plays in their journey.About Samiha Rahman:I’m Samiha, a 24-year-old young caregiver from Toronto, Canada. I graduated with a Bachelor of Medical Sciences in 2022 from Western University and am going back there this fall for Medical School. Since graduating, I’ve been working at Hospice Toronto, a non-profit organization that I’ve been a part of for almost 10 years (with their Young Carers Program). I love spending time with my friends and family, walks by the lake, and trying new restaurants. About Aaliyah Zarem:I am a 14-year-old older sister and competitive rock climber. I also love camp and canoe trips. Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Bridging the Gap: Enhancing Policies to Support Caregiving Youth
22-08-2024
Bridging the Gap: Enhancing Policies to Support Caregiving Youth
This week’s special policy panel, featuring experts Marvell Adams Jr. and Toni Gingerelli, discussed policy change and support for caregiving youth. They highlighted the significant gap between the estimated 5.4 million youth caregivers and the likely much larger actual number, emphasizing the need for better data collection through school-based assessments and self-reporting to understand this hidden population's challenges and experiences.The discussion, featuring Marvell Adams Jr. and Toni Gingerelli, covered the impacts of youth caregiving, such as educational disruptions and mental health struggles. They emphasized the need for recognition, resources, and inclusive policies, praising the national strategy to support family caregivers while calling for more inclusivity of youth caregivers. The conversation highlighted the urgent need for equitable, innovative, and collaborative policy solutions to better serve caregiving youth.About:Marvell Adams Jr. is the CEO of Caregiver Action Network (CAN), dedicated to serving caregivers, marginalized communities, and older adults. Inspired by Alzheimer’s disease since high school, he holds a Bachelor’s in Political Science and a Master of Healthcare Administration specializing in Aging Services. CAN aims to improve the quality of life for millions of family caregivers supporting loved ones with chronic conditions, disabilities, or diseases.Website: www.caregiveraction.org/Facebook: @CaregiverActionNetworkInstagram: @caregiveractionLinked In: @caregiver-action-networkYouTube: @CaregiverActionTikTok: @caregiveractionAntoinette 'Toni' Gingerelli, Director of Policy and Advocacy for the National Alliance for Caregiving, translates research into policy for America's 53 million family caregivers. She oversees operations for Act on RAISE, Caregiver Nation Network, and the direct care workforce policy portfolio. Previously Chief of Staff for NJ State Senator Vin Gopal, Toni holds a Master of Public Policy from Harvard Kennedy School and is an advocate for gender equity.Website: https://www.caregiving.org  Facebook: https://www.facebook.com/NA4Caregiving/ Instagram: https://www.instagram.com/caregiver_nation/ LinkedIn: https://www.linkedin.com/company/national-alliance-for-caregiving/ Twitter: https://twitter.com/NA4Caregiving YouTube:  https://www.youtube.com/c/TheNationalAllianceforCaregiving  Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Caregiving Wisdom Beyond His Years: Lessons from a 16-Year-Old Trailblazer
20-08-2024
Caregiving Wisdom Beyond His Years: Lessons from a 16-Year-Old Trailblazer
This week’s episode gives us a powerful and insightful look into the life of Aditya Akella, a 16-year-old caregiver for his younger brother with autism. Aditya's story is one of resilience, responsibility, and a deep commitment to his family. From navigating cultural differences in caregiving between India and England to balancing his academic and social life, Aditya's experiences offer a rare and valuable perspective on the challenges and triumphs of being a young carer.Aditya demonstrates a level of wisdom and maturity that belies his young age. He eloquently articulates the importance of understanding the unique needs of each young carer, rather than making assumptions or providing one-size-fits-all solutions. Aditya's advocacy efforts, including speaking at the House of Lords and participating in a documentary, further highlight his dedication to raising awareness and creating positive change for young carers like himself.Aditya touches on the importance of self-care and finding balance as a caregiver. He shares his personal strategies, such as spending time with his beloved dog and indulging in the occasional video game or hot chocolate, as ways to recharge and maintain his own well-being. Aditya’s story serves as an inspiration to other young carers, reminding them that they are not alone and that their experiences, though challenging, can also be a source of strength and personal growth.About Aditya:A self-described “regular teenager in England”, Aditya is interested in cars, public speaking, sports and politics.  He is a proud older brother for his younger brother, age 11, who has severe autism, ADHD, and is non-verbal. Aditya share, “A lot of carers fall into the trap of feeling insecure or restricted by their role, though being a carer is more of a launchpad than it is a well”. Connect with Aditya:Linked In: https://www.linkedin.com/in/aditya-akella-349297267/Blog: https://akellatech.blogspot.com/** The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.**Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Kids Kicking Cancer: Empowering Children to Find their Power, Peace, and Purpose
15-08-2024
Kids Kicking Cancer: Empowering Children to Find their Power, Peace, and Purpose
Kids Kicking Cancer's work is vital in supporting families navigating the complexities of chronic illness.  KKC empowers children with chronic illnesses and their families through the power of martial arts and breathwork. Founder and International Director Rabbi Elimelech Goldberg “Rabbi G” shares his deeply personal story that led to the creation of Kids Kicking Cancer and the organization's remarkable growth from 10 children in 1 facility to over 126 facilities across 10 countries.Rabbi G, alongside Global Program Director Cindy Cohe, explains the organization's distinctive method - using therapeutic martial arts techniques to assist children in handling pain and stress. KKC also promotes a sense of purpose, peace, and community. Kids Kicking Cancer values the family unit as a whole, offering support not only to the child in treatment but also to siblings, parents, and other caregivers. We discuss the difficulties faced by caregiving youth and stress the significance of establishing a supportive network for these often-overlooked individuals. They go on to share about The Heroes Circle Pediatric Healing Program, which teaches martial arts meditation, non-contact movement, and breathing techniques designed to empower children to take control of the pain and stress of their illness. Their evidence-based program is taught in-person and virtually by black belt Therapeutic Martial Arts Instructors and is provided to families at no cost. Children 3 years and older with ANY pediatric illness, and their siblings, are eligible for the program.  Social Media: Website: https://heroescircle.org/Facebook: https://www.facebook.com/kidskickingcancer Instagram: @kidskickcancerLinked In: https://www.linkedin.com/company/kids-kicking-cancerTwitter: x.com/kidskickcancerYouTube: https://www.youtube.com/c/KidsKickingCancerBooks/E-Book/Resource: https://a.co/d/0bs6YgyGSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Childhood Interrupted: The Realities of Caregiving for Youth
13-08-2024
Childhood Interrupted: The Realities of Caregiving for Youth
This week, we explore the compelling story of Dr. Feylyn Lewis, who assumed the role of caregiver for her mother at the age of 11. Following an unsuccessful spinal surgery that resulted in her mother's severe disability, Feylyn found herself taking on the responsibilities of a youth caregiver, assisting with her mother's daily needs and medication regimen.Despite facing significant challenges, Feylyn balanced her caregiving duties with her education and personal life. Her story serves as a testament to the strength and determination of young caregivers, who often bear burdens beyond their years. Through her advocacy and research, Feylyn has become a leading figure in supporting and empowering these unseen heroes, striving to ensure that no child experiences the isolation and fear she encountered as a young caregiver.Feylyn candidly reflects on her caregiving journey and shares insights into the unique challenges and needs of youth caregivers. Her narrative reminds us of the importance of recognizing and supporting these unsung heroes and underscores the profound impact that even the youngest individuals can have on the lives of their loved ones.About:A native of Nashville, Tennessee and a Vanderbilt University alumna, Dr. Lewis grew up as a youth caregiver for her disabled mother. Her experience with caregiving, disability, and living life on the margins led her on a path of global research and advocacy. She has a Master’s degree in Clinical Mental Health Counseling and a PhD in Social Work. Her research focuses on mental health and resiliency in youth and young adult caregivers, and she conducts research in the US, Europe, UK, and Australia. Dr. Lewis currently works as the Assistant Dean of Student Affairs at Vanderbilt University School of Nursing, where she is responsible for providing vision, leadership and strategic planning for student affairs programming that delivers holistic wellness formal support services, student life and community engagement.Outside of work, she serves as the Vice-President of Diversity, Equity, Inclusion, and Belonging in the Junior League of Nashville and co-chairs the Congressionally appointed PCORI Healthcare Delivery and Disparities Research Advisory Panel, and she sits on numerous other international advisory boards. She currently resides in Nashville where she continues to provide care for her mother.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Caregiving Youth: A Powerful Voice from the Next Generation
06-08-2024
Caregiving Youth: A Powerful Voice from the Next Generation
At just 18 years old, Kaylin Jean-Louis has already taken on the immense responsibility of caring for her grandmother with Alzheimer's disease. Her story is a powerful testament to the resilience and wisdom of caregiving youth, hidden in plain sight. From a young age, Kaylin has navigated the challenges of her grandmother's declining health, helping her mother with daily routines and advocating for her needs at school. Despite the difficulties, Kaylin has found solace in her passions, such as marching band, which provided a much-needed safe space to express herself.Kaylin's caregiving journey has not only shaped her personal growth but has also inspired those around her. She has openly shared her experiences with her peers, breaking down the stigma and isolation often faced by young caregivers. Kaylin's willingness to be vulnerable and her desire to support others in similar situations have created a ripple effect, connecting her with like-minded individuals eager to learn and lend a helping hand.At the heart of Kaylin's story is the deep-rooted family values that have been passed down through generations. Her grandmother's example of selfless service and compassion has instilled in Kaylin a profound sense of purpose, driving her to aspire to inspire others. As Kaylin continues to navigate the complexities of caregiving, her unwavering spirit and determination serve as a beacon of hope for young people facing similar challenges. Her story is a testament to the power of resilience, empathy, and the transformative impact that caregiving can have on one's life.About Kaylin:Kaylin Jean-Louis is not just an 18-year-old third-year Broadcast Journalism scholar from Tallahassee, Florida. She is a dynamic force for positive change, embodying the spirit of compassion and service in everything she does. With a humble yet powerful mantra, "I don't want to be famous, I just want to make a difference in people's lives," Kaylin is making an indelible impact on her community and beyond.Born and raised in Tallahassee, Kaylin discovered her passion early. She founded Kaylin's Caring Konnection, Inc., and the Youth Care Too! Movement, advocating for young caregivers.Kaylin hosts "Inspiring Moments with Kaylin" on Hallelujah 95.3 FM and "Feel Good Vibes & Motivation" on 90.5 The Flava. Her ultimate goal is to inspire future generations to unlock their full potential and become award-winning multimedia journalists who empower others.The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Caregiving Around the World Panel Discussion
01-08-2024
Caregiving Around the World Panel Discussion
This week's panel discussion unveils the hidden reality of caregiving youth worldwide. Representatives from the US, UK, Canada, and Australian organizations discuss the significant challenges young caregivers face, including lack of awareness, cultural barriers, policy gaps, and limited access to support.The panelists, each with their unique experiences and insights, share a wealth of knowledge about the needs and experiences of young caregivers in their respective countries. They underscore the importance of early identification, culturally sensitive services, and policy changes to better support this vulnerable population.Despite the challenges, the discussion highlights the strengths and resilience of young caregivers, who often take on adult responsibilities to support their families. This episode provides a comprehensive overview of the global state of caregiving youth support and the critical work being done to empower and advocate for them.The panelists invite listeners to support their efforts through donations and awareness-raising initiatives. They emphasize the importance of recognizing and aiding caregiving youth, who play a vital role in their families and communities.International Panel:Andy McGowan, Carers Trust (UK)Madeline Buchner, Little Dreamers (Australia)Chelsea-Anne Alex, Hospice Toronto - Young Carers Program (Canada)Connie Siskowski, American Association of Caregiving Youth (US)The sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.Support the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Growing Up Caring: A Young Carer's Story of Resilience
30-07-2024
Growing Up Caring: A Young Carer's Story of Resilience
Rebekah Dowhy started caregiving young when her mother was diagnosed with multiple sclerosis at her birth. Over time, she became a primary caregiver, handling tasks like feeding, medications, and wound care. It was emotionally challenging as she dealt with her mother's terminal illness and felt isolated in her caregiving role.Despite challenges, Rebekah maintained a strong bond with her mother, finding joy in their shared moments. Following her mother's passing in 2017, Rebekah grappled with loss but discovered purpose in nonprofit work. At 27, she founded the Caregiving Support Network to address caregivers' isolation and provide practical assistance through services like home care and emotional support.Rebekah's caregiving journey from childhood through founding CSN shows remarkable strength and resilience. By turning her hardships into help for others, she is making a difference for caregivers nationwide. Her work honors the care she provided for her mother and ensures no one feels alone in their caregiving role.About Rebekah:Rebekah is the founder and President of the Caregiving Support Network, a ministry dedicated to giving hope and practical relief to unpaid family caregivers.Rebekah understands the relief respite care brings to caregivers. Her mother was diagnosed with MS the year she was born. Rebekah's caregiving started with simple tasks like brushing her mother's hair, but expanded to managing complex medical needs as her mother's illness advanced.In 2015, the Caregiving Support Network idea was born while caring for my mother. I knew other caregivers shared the same challenges and joys. In 2022, that idea became reality.Social Media:Website: https://www.caregivingsupportnetwork.org/ Facebook: https://www.facebook.com/caregivingsupportnetwork Instagram: https://www.instagram.com/caregivingnetwork/?hl=en Email: info@caregivingsupportnetwork.orgThe sisters proudly partner with the Caregiver Action Network. CAN's Caregiver Help Desk offers free support to family caregivers via phone, chat, or email Monday through Friday, 8:00 am - 7:00 pm Eastern. Get answers, resources, support group info, or a listening ear. Visit www.caregiveraction.org/helpdesk/ or call 855-277-3640.********************************************************************************************Ready for even MORE honest caregiver conversations?  Become a supporter of "Confessions of a Reluctant Caregiver" and unlock bonus episodes, behind-the-scenes peeks, and resources you won't find anywhere else! Plus, your support makes this podcast possible!  Sign up at https://www.buzzsprout.com/2101429/subscribeSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Leaving a Legacy of Health: Caregiving Experiences and the Drive to Educate Others
23-07-2024
Leaving a Legacy of Health: Caregiving Experiences and the Drive to Educate Others
Beverly Barnett is a registered nurse and men's health advocate. She has dedicated her life and career to healthcare after developing a passion for nursing as a young girl receiving treatment at a segregated clinic in her hometown. She drew inspiration from the compassionate nurses who cared for her during this difficult time.Beverly shared her personal caregiving journey of caring for her husband after he was diagnosed with late-stage colorectal cancer. Despite being a nurse, she struggled with feelings of anger that he had ignored symptoms for so long before seeking treatment. She cared for him at home for the three years he battled the disease, which took an emotional toll. After his passing, Barnett was inspired to help educate others, especially black men, about the importance of early detection and regular doctor visits.Through her nursing experience and family health challenges, Barnett has gained valuable perspectives that she utilizes in her mission to promote proactive healthcare. She continues advocating for men's health issues while also caring for her aging father with dementia. Barnett's story illustrates the lifelong impact of caregiving and how personal experiences can shape one's career and drive to help others.About Beverly:For Beverly Barnett, nursing is more than a job—it’s her calling. Inspired by a childhood illness, she pursued practical nursing right after high school and earned a bachelor’s degree within four years. Her dedication led her to obtain a Master of Science in Nursing, allowing her to teach and shape future nurses.Beverly’s passion extends to men’s wellness, particularly the health of Black men, influenced by her husband’s battle with cancer. She believes chronic illnesses rob families of priceless moments and advocates for men to lead by example in health practices.Beverly recommends four steps to promote proactive health among Black men: understand your family’s medical history, commit to annual check-ups, share your family’s health history with your doctor, and track health metrics. These steps aim to shift from reactive to proactive health management, fostering a healthier life journey.********************************************************************************************Ready for even MORE honest caregiver conversations?  Become a supporter of "Confessions of a Reluctant Caregiver" and unlock bonus episodes, behind-the-scenes peeks, and resources you won't find anywhere else! Plus, your support makes this podcast possible!  Sign up at https://www.buzzsprout.com/2101429/subscribeSupport the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Caregiving Rapids: Navigating the River of Aging and Independence
16-07-2024
Caregiving Rapids: Navigating the River of Aging and Independence
Theresa Wilbanks' caregiving journey began unexpectedly when she lived abroad in Europe with her husband. As her father aged into his 90s, she took on more of an advocacy and support role from a distance. However, a series of health scares brought Theresa back home to the United States to serve as her father's primary caregiver. She dove headfirst into the intense role, unprepared for the emotional toll it would take. Through trial and error, Theresa navigated countless challenges with her father's independence, medical management, and resistance to help. She experienced deep burnout as small conflicts like spilled blueberries came to represent the daily struggles.Determined to find sustainable strategies, Theresa worked to understand her own emotions and reactions within the caregiving relationship. She embraced mindfulness practices and set boundaries to better support her father while also caring for herself. Theresa's realization of accepting her fate as a caregiver rather than resisting it proved a turning point that allowed her to find meaning and growth in the experience. By openly sharing her journey, Theresa has helped countless other caregivers feel less alone and equipped them with practical tools for building resilience.Today, Theresa continues her work to help caregivers through her writing, speaking, and role as founder of Sustainable Caregiving. Through the 12 strategies she developed on her own challenging river of a journey, she aims to reframe caregiving as an opportunity rather than a burden. Theresa's authentic storytelling provides hope, insight, and valuable lessons for anyone navigating the complex emotions and realities of caring for an aging loved one.About Theresa:Theresa Wilbanks is an author, speaker, podcast host, and founder of SustainableCaregiving. Theresa’s passion and purpose are to guide family caregivers on theirjourney as they manage and provide care for a family member.Theresa’s career enabled her to lead teams and develop training programs. She left it behind to live in France and didn’t look back until caring for her father became necessary. The caregiving experience inspired her to found Sustainable Caregiving and guide fellow family caregivers on their journey.She became a Certified Caregiving Consultant and realized that more was needed as she began connecting caregivers to resources. Using skills developed in the corporate setting, Theresa deconstructed what made caregiving so overwhelmingly challenging. Through trial, error, and tears, she created the 12 Sustainable Caregiving Strategies to help caregivers navigate their journey empowered with confidence.Theresa shares her vision of a sustainable caregiving journey and offers hope to family caregivers through speaking and in her book Navigating the Caregiver River: A Journey to Sustainable Caregiving. Go to https:www.sustainablecaregiving.com for more information on how toSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
Unconditional Love in Action: Honoring Vows Through Sickness and Health
09-07-2024
Unconditional Love in Action: Honoring Vows Through Sickness and Health
Ready for even MORE honest caregiver conversations?  Become a supporter of "Confessions of a Reluctant Caregiver" and unlock bonus episodes, behind-the-scenes peeks, and resources you won't find anywhere else! Plus, your support makes this podcast possible!  Sign up at https://www.buzzsprout.com/2101429/subscribe********************************************************************************************Terrance Hawthorne is the epitome of unconditional love and devotion. For the last two years, he has courageously served as the primary caregiver for his wife LuCretia as she recovers from a brain aneurysm and multiple strokes. Despite facing this incredibly difficult situation, Terrance maintains an inspiring attitude and finds comfort, grace, and purpose in being by LuCretia's side. He honors his marriage vows completely by ensuring LuCretia feels respected, dignified, and engaged in life through small acts of care and involvement in the community. Even while working full-time, Terrance prioritizes LuCretia's needs above all else. He advocates for himself and asks for help when needed to support his wife during her recovery journey better. Terrance's compassion and servant's heart are evident in his actions for LuCretia and others. He hopes to use their story to uplift and empower other caregivers through the Caregiver Lifestyle Foundation.About Terrance:Terrance & LuCretia Hawthorne have been married for 23 years and hail from Mobile, Alabama. They relocated to Tampa, Florida in 2002 to embark on a new chapter as Mr. and Mrs. Hawthorne. As a blended family with 7 kids and 11 grandchildren, they dedicated nearly 20 years to serving in Revealing Truth Ministry, actively involved in the Marriage, Outreach, and Homebuyers ministries. Renowned as pillars in their community, they assisted the homeless and supported children in foster care.Terrance and his wife are the proud owners of Platinum Plus Beauty Studio, a local business that has been serving the community for 18 years. While his wife pursued her dream as a Real Estate Agent, Terrance worked as a Supervisor in a local union and also served as a Credit Repair Agent. Together, they conducted free homebuyers and credit repair classes for the community, emphasizing financial literacy and the importance of building a lasting legacy for families.In 2020, during the pandemic, a life-altering event occurred when Terrance's wife suffered a Brain Aneurysm and Multiple Strokes, with only a 1% chance of survival. Emerging from a Coma and battling Life Support, her miraculous recovery was a testament to God's purpose. Terrance now serves as her full-time caregiver, standing faithfully by her side through sickness and health. With unwavering hope, they continue to believe in her complete recovery, as healing is her destined path.Connect with Terrance:Instagram: @TerrancehawthorneFacebook:  @TerrancehawthorneSupport the showConfessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network