Hacking Hypermobility

Two Bendy Mommas

We explore the health and wellness concerns of people on the hypermobility spectrum from diagnosis to management, asking those on the forefront of research and treatment how to help all of us on the hypermobility and connective tissue disorder spectrum including the Ehlers-Danlos Syndromes. Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support read less
健康・フィットネス健康・フィットネス

エピソード

2.2 Year in Review 2023 - Hypermobility Edition
15-02-2024
2.2 Year in Review 2023 - Hypermobility Edition
The Bendy Mommas continue the second season with a review of Zebra news from 2023.  Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes. If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com or info@hackinghypermobility.com Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice. References Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect  Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023 Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society $2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS) EDS Maternity Co-created Tools | hEDS Together 2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society --- Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support