Dementia Researcher

Dementia Researcher

A biweekly podcast for early career researchers, bringing together fantastic guests to discuss their research, careers + much more. Dedicated to sharing the science, encouraging collaborations, attracting more people to the field, and supporting those already here to succeed. Brought to you by https://www.dementiaresearcher.nihr.ac.uk at University College London, in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia - everything you need, all in one place. supporting early career researchers across the world Register today to recieve weekly bulletins, with news, funding opportunities, jobs, and events. read less
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Viva La Success: Acing Your PhD Thesis Defence
6日前
Viva La Success: Acing Your PhD Thesis Defence
In this episode of the Dementia Researcher Podcast, Dr Leah Fullegar discusses the PhD viva experience with three recent graduates who share their insights into the preparation and execution of their defences. Join us to learn from the experiences of Dr Hannah Hussain, Dr Aisling Flynn, and Shalom Henderson, who bring diverse perspectives from their respective fields. Each guest shares valuable insights into the preparation techniques that aided them, as well as reflections on their personal experiences of the viva. For anyone approaching their PhD defence or interested in understanding more about this crucial academic challenge, this podcast provides a comprehensive overview and practical advice. -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode. You can also find a video of our podcast on YouTube: https://youtu.be/2-wMNOh40Lo -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher
Minds In Motion - Dr Lis Grey, Service Evaluation & Intervention Development
03-01-2025
Minds In Motion - Dr Lis Grey, Service Evaluation & Intervention Development
The Minds in Motion Podcast from Dementia Researcher in association with the NIHR Applied Research Collaborations and Alzheimer’s Society, brings together NIHR Dem Comm Research Fellows, to talk about their research and careers. Over the next few months, we will be releasing the second series, hearing from five of the Dem Comm Fellows each taking e a turn as co-host and guest. Alongside the researchers we have the incredible Trevor Salomon, Alzheimer’s Society Volunteer & Chair of the European Dementia Carers Working Group as our permanent co-host and anchor. In show Trevor is joined by the guest from our previous show Dr Olivia Luijnenburg from King’s College London and the NIHR Applied Research Collaboration (ARC) South London to interview Dr Elisabeth (Lis) Grey. Lis works in the NIHR ARC West and University of Bristol. Lis is interested in how people with neurodegenerative disorders experience health and care services and is working on developing ways to improve services and support people to live well with these conditions. Lis has had a varied research career – from health services quality and delivery, through public health interventions and social care, and now more secondary and community care. The common threads to this work are health communication – be that between professionals, patient and professional, or to the public – and intervention development and evaluation. Lis mainly uses qualitative methods, particularly interviewing, and she is always excited to hear people’s thoughts and experiences through her work. Dem Comm is a 2 year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. It supports a new generation of dementia research leaders, bringing together researchers from different multidisciplinary backgrounds to encourage cross-cutting and community-orientated dementia research projects that can address key gaps in the evidence around dementia care and support, delivering transformative translational research. For information on the Fellowship visit: http://www.arc-wx.nihr.ac.uk/dem-comm-research-fellows For guest biographies, a full transcript and much more visit: http://www.dementiaresearcher.nihr.ac.uk Like what you hear? Please review, like, and share our podcast, and don't forget to subscribe to ensure you never miss an episode. If you prefer to watch rather than listen, you’ll find a video version of this podcast on our website & on YouTube: https://youtu.be/dlmu1JiW2Bc This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. Follow us on Social Media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.bsky.app/profile/dementiare…archer.bsky.social http://www.linkedin.com/company/dementia-researcher
2024 End of Year Reflections from Dementia Researchers
22-12-2024
2024 End of Year Reflections from Dementia Researchers
Happy Holidays to all our listeners. Celebrate the season with the Dementia Researcher Podcast Christmas Special! Hosted by Adam Smith, this episode features regular bloggers from the Dementia Researcher website, Dr Anna Volkmer, Dr Connor Richardson, Dr Sam Moxon, Dr Jodi Watt, and Dr Clíona Farrell. Together, they reminisce about their 2024 journeys, discuss groundbreaking developments in their research field and explore what they’re most excited about for the coming year. Laced with humor and camaraderie, and some festive questions. Want to hear more from our guests? Check them out: Adam Smith: https://bit.ly/3DCHA4K Dr Anna Volkmer: https://bit.ly/4freouN Dr Connor Richardson: https://bit.ly/4gPwBUe Dr Jodi Watt: https://bit.ly/41Mqprz Dr Sam Moxon: https://bit.ly/41LLW3x Dr Clíona Farrell: https://bit.ly/4iPGh2D -- Full biographies on all our guests and a transcript can be found on our website: www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: onelink.to/dementiaresearcher
International Symposium on ALS / MND Roundup 2024
12-12-2024
International Symposium on ALS / MND Roundup 2024
In this special episode, recorded in Montreal, Canada, we bring you highlights from the International Symposium on ALS/MND 2024 organised by the MND Association. Host Dr Alys Griffiths, Senior Research Fellow at the University of Sheffield, is joined by three expert guests to discuss the latest research and breakthroughs in Amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND). Dr Megan Fowler, a postdoctoral researcher from Flinders University, shares insights into her work on endogenous retroviruses and their role in ALS. Professor Eneida Mioshi, from the University of East Anglia, explores cognitive and behavioural changes in ALS and FTD and their impact on care. Dr Ahmad Al Khleifat, a group leader at King’s College London, highlights advancements in genomic research and efforts to diversify ALS studies globally. Key topics include promising therapies like antisense oligonucleotides, the integration of patient voices in research, and the power of collaboration to accelerate progress. For more updates, follow #ALSMNDSymposium on social media or visit https://symposium.mndassociation.org -- Full biographies on all our guests and a transcript can be found on our website: www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: onelink.to/dementiaresearcher
Grant Writing - Tips from Grant Awardees & Grant Reviewers
09-12-2024
Grant Writing - Tips from Grant Awardees & Grant Reviewers
Recorded at the Alzheimer's Society ECR Retreat on the 19th June 2024. -- In this panel discussion / question and answer session, Katherine Gray, Alzheimer's Society Head of Research chairs a discussion with Professor Heather Mortiboys, Professor Nathan Davies, Dr Jeffrey Davies, Professor Andrey Abramov and John Major. Panellists provide tips and insights into the grant application process, providing their perspectives as grant reviewers and funding board members. They also provide advice on how to approach grant application writing. The panellists, who are leading researchers and volunteers on grant advisory boards, discuss the key components of a successful grant application, common mistakes, and how to demonstrate the potential impact of research. They also provide advice on resubmitting applications after initial rejection and how to effectively manage career breaks. Together they emphasise the importance of clear hypotheses, realistic expectations, proper costing, and team science. They also highlight the need for perseverance and flexibility in the application process. -- Last week Alzheimer’s Society announced that the ECR Retreat will be back on the 8th-9th July 2025. Keep an eye on the Dementia Researcher website for updates, and details on how to apply. -- Full biographies on all our guests and a transcript can be found on our website: https://ww.dementiaresearcher.nihr.ac.uk Watch more recordings from the ECR Retreat on our YouTube Channel: https://bit.ly/alzsocecrretreat2024 -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher
Minds In Motion - Dr Olivia Luijnenburg, Spirituality in Dementia Care
25-11-2024
Minds In Motion - Dr Olivia Luijnenburg, Spirituality in Dementia Care
The Minds in Motion Podcast from Dementia Researcher in association with the NIHR Applied Research Collaborations and Alzheimer’s Society, brings together NIHR Dem Comm Research Fellows, to talk about their research and careers. Over the next few months, we will be releasing the second series, hearing from five of the Dem Comm Fellows each taking e a turn as co-host and guest. Alongside the researchers we have the incredible Trevor Salomon, Alzheimer’s Society Volunteer & Chair of the European Dementia Carers Working Group as our permanent co-host and anchor. -- In show Trevor is joined by Dr Sarah Smith from The University of Manchester and NIHR Applied Research Collaboration (ARC) Greater Manchester to interview Dr Olivia Luijnenburg. Olivia works in the NIHR Health and Social Care Workforce Research Unit at King’s College London. She works on various projects around social care workforce and care homes, however the focus in this show is on her research into spirituality in dementia care. We explore her focus on co-developing reflective tools to address the spiritual needs of care home residents living with dementia, as well as their families and care staff. Working to understand how spirituality, is broadly defined to define individuals meaning and purpose, and how accommodating this can enhance care practices in diverse settings. -- Dem Comm is a 2 year programme funded by the National Institute of Health and Care Research and the Alzheimer's Society. It supports a new generation of dementia research leaders, bringing together researchers from different multidisciplinary backgrounds to encourage cross-cutting and community-orientated dementia research projects that can address key gaps in the evidence around dementia care and support, delivering transformative translational research. -- For information on the Fellowship visit: http://www.arc-wx.nihr.ac.uk/dem-comm-research-fellows For guest biographies, a full transcript and much more visit: https://www.dementiaresearcher.nihr.ac.uk - Like what you hear? Please review, like, and share our podcast, and don't forget to subscribe to ensure you never miss an episode. If you prefer to watch rather than listen, you’ll find a video version of this podcast on our website & on YouTube. -- This podcast is brought to you in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia, who we thank for their ongoing support. -- Follow us on Social Media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.bsky.app/profile/dementiare…archer.bsky.social https://www.linkedin.com/company/dementia-researcher
Stronger Together: Peer Support and Community
11-11-2024
Stronger Together: Peer Support and Community
In this episode of the Dementia Researcher Podcast, guest host Dr Megan Rose Readman from the University of Liverpool discusses the role of peer support and community in research careers. This session explores the importance of support networks at all career stages, from early career to senior roles. Megan is joined by three guests, each with experience in building and sustaining research communities specifically to support researchers working in all areas of Alzheimer's disease and all other forms of dementia, and neurodegeneration: Adam Smith from Dementia Researcher, who discusses their global community, including the recent launch of a new app designed to connect researchers. Dr Oz Ismail from Alzheimer's Association and ISTAART, who provides insights into their professional society’s efforts to support Alzheimer’s research globally. Josh Wright from Alzheimer’s Research UK, who explains the structure and benefits of their UK-wide network, especially for early-career researchers. -- Listeners will gain an understanding of how these communities function and the different forms of support available, from mentoring to practical resources. The episode also touches on how the pandemic has shifted peer support needs, with virtual communities becoming essential for many researchers. -- Five Top Tips from the show: Seek Out Professional Networks: Engaging with professional societies, like ISTAART or Dementia Researcher, can provide access to a broad community of peers and experts, which is especially valuable if you're working in isolation or in a niche area. Leverage Online Communities: Virtual communities offer a space to connect with others in your field, share resources, and find support—important for building connections, particularly when geographic location or funding constraints make in-person networking challenging. Participate in Mentorship Opportunities: Many research networks offer mentorship programmes, often through dedicated platforms or apps, where you can find mentors or become one yourself, helping to navigate career stages or specific research challenges. Engage in Journal Clubs and Special Interest Groups: Virtual journal clubs or topic-specific groups, as seen in Dementia Researcher’s app, allow researchers to discuss recent studies, share insights, and collaborate within specific research interests. Use Peer Support to Improve Wellbeing: Peer support networks provide a safe space for discussing challenges and successes beyond research—such as mental health or career setbacks—offering a layer of personal support often needed in academic careers. -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk Essential links / resources mentioned in the show: ISTAART - https://bit.ly/48E570N Alzheimer's Research UK Network - https://bit.ly/3AKKXpf Dementia Researcher Community App - https://bit.ly/3UJ2jd6 -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher
Decoding Familial British Dementia
28-10-2024
Decoding Familial British Dementia
In this Dementia Researcher Podcast episode, Dr Aitana Sogorb Esteve hosts a discussion with Dr Charlie Arber and Sam Crawford from University College London, discussing their work on familial British dementia (FBD), a rare form of dementia affecting only a handful of families. The discussion explores the latest findings from human stem cell models that are helping researchers understand FBD’s unique genetic and pathological features, and how that can inform a wider understanding of familial Alzheimer’s Disease. Topics covered include: - Genetic causes and symptoms of familial British dementia - Use of stem cell models, particularly iPSCs, to study FBD in the lab - Potential biomarkers and implications for therapeutic research - How funding from the Race Against Dementia Ignition Fund is supporting advancements in rare dementia research -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk Find out more at Race Against Dementia: https://www.raceagainstdementia.com/ -- Like what you see? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher
Alzheimer Europe 2024 Conference Highlights - Part Two
14-10-2024
Alzheimer Europe 2024 Conference Highlights - Part Two
Last week Dementia Researcher attended the 34th Alzheimer Europe Conference in Geneva, Switzerland. In this podcast Dr Megan Polden and her guests bring you highlights from the second half of the event, sharing news and their best bits. Dr Megan Polden talks with Dr Aisling Flynn from Bournemouth University and Dr Emma Law from the Scottish Neuroprogressive and Dementia Network and Dr Lukas Duffner from Alzheimer Europe. This year’s Alzheimer Europe Conference, themed 'New Horizons – Innovating for Dementia,' brought together a diverse group of participants, including people living with dementia, carers, volunteers, Alzheimer association staff, policymakers, health and social care professionals, researchers, and academics. It remains a unique platform where the latest advances in fundamental science, care, policy, and public engagement are shared and discussed. Essential links / resources mentioned in the show: Alzheimer Europe - https://www.alzheimer-europe.org INTERDEM - https://interdem.org #34AEC on X - https://bit.ly/4dH3yjw Sex, Gender and Sexuality in the Context of Dementia - https://bit.ly/3UaVuk7 -- You can find out more about our guests and their work on our website. There you will also find a full transcript of the show: https://www.dementiaresearcher.nihr.ac.uk -- Prefer to watch rather than listen? Then check-out our YouTube channel for a full video version of this podcast: https://www.youtube.com/@DementiaResearcher -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://www.bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://www.onelink.to/dementiaresearcher -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, University College London or its partner organisations.
Alzheimer Europe 2024 Conference Highlights - Part One
11-10-2024
Alzheimer Europe 2024 Conference Highlights - Part One
Last week Dementia Researcher attended the 34th Alzheimer Europe Conference in Geneva, Switzerland. In this podcast Dr Megan Rose Readman and her guests bring you highlights from event, sharing news and their best bits from the hundreds of posters and talks delivered. Dr Megan Rose Readman talks with Dr Fiona Carragher from Alzheimer’s Society and Dr Andy Northcott from the Geller Institute of Ageing and Memory, University of West London and Dr Sébastien Libert from Alzheimer Europe. This year’s Alzheimer Europe Conference, themed 'New Horizons – Innovating for Dementia,' brought together a diverse group of participants, including people living with dementia, carers, volunteers, Alzheimer association staff, policymakers, health and social care professionals, researchers, and academics. It remains a unique platform where the latest advances in fundamental science, care, policy, and public engagement are shared and discussed. Essential links / resources mentioned in the show: Alzheimer Europe - https://www.alzheimer-europe.org INTERDEM - https://interdem.org #34AEC on X - https://bit.ly/4dH3yjw Carol Jennings Story - https://bit.ly/3ZXPpeJ -- You can find out more about our guests and their work on our website. There you will also find a full transcript of the show: https://www.dementiaresearcher.nihr.ac.uk -- Prefer to watch rather than listen? Then check-out our YouTube channel for a full video version of this podcast: https://www.youtube.com/@DementiaResearcher -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://www.bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://www.onelink.to/dementiaresearcher
ISFTD 2024 Conference Highlights
30-09-2024
ISFTD 2024 Conference Highlights
In this podcast we bring you highlights from the International Society for Frontotemporal Dementias (ISFD) Conference, which was held in Amsterdam from the 19th to 22nd September 2024. Dr Anna Volkmer talks with Dr Martyna Matuszyk from Alzheimer’s Society and Dr Aitana Sogorb Esteve from University College London discussing their highlights and recapping on the event and what they’re taking away from this year’s talks. -- The International Society for Frontotemporal Dementias is a non-profit scientific society focused on frontotemporal dementias. Members include the leaders in FTD research around the world, and the society is associated with a large, international biannual meeting (soon to be annual) presenting the latest findings. For more information visit: https://www.isftd.org -- You can find out more about our guests and their work on our website. There you will also find a full transcript of the show: https://www.dementiaresearcher.nihr.ac.uk -- Prefer to watch rather than listen? Then check-out our YouTube channel for a full video version of this podcast: https://www.youtube.com/@DementiaResearcher -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: https://www.instagram.com/dementia_researcher/ https://www.facebook.com/Dementia.Researcher/ https://www.twitter.com/demrescommunity https://www.linkedin.com/company/dementia-researcher https://www.bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://www.onelink.to/dementiaresearcher
The Epigenetic Equation
16-09-2024
The Epigenetic Equation
In this episode of the Dementia Researcher Podcast, guest host Dr Fiona McLean is joined by Dr Josh Harvey (University of Exeter), Dr Sarah Marzi (King’s College London), Dr Alexi Nott (Imperial College London), and Dr Sam Washer (Wellcome Trust Sanger Institute) to discuss the role of epigenetics in Alzheimer’s and dementia research. The episode offers a broad exploration of epigenetics in neurodegenerative diseases, highlighting how gene regulation beyond DNA sequences is advancing our understanding of Alzheimer’s and related conditions. It covers the impact of environmental and lifestyle factors on disease development, as well as emerging research techniques and technologies that could inform future diagnostic and therapeutic approaches. -- Key Topics: • The fundamentals of epigenetics and its distinction from traditional genetics. • How epigenetic research is shaping our understanding of Alzheimer's disease. • The role of environmental factors in influencing epigenetic changes. • New technologies and their application in epigenetic studies. • The potential for epigenetics in developing future diagnostics and therapies for neurodegenerative diseases. -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: https://onelink.to/dementiaresearcher
Prioritising People in Co-Produced Research
02-09-2024
Prioritising People in Co-Produced Research
In this episode of the Dementia Researcher podcast, Dr Anna Volkmer leads a discussion on the importance of co-production in dementia research. This episode explores what it truly means to involve people with lived experience, with tips on how to go about it, and our guests own experience in working together. They also discuss the research process and how this approach can lead to more relevant and impactful outcomes. Featured Guests: •Dr Barbora Silarova: An NIHR / Alzheimer’s Society Dem Comm Fellow at the University of Kent. Barbora brings her expertise in supporting people living with dementia and their carers. She shares insights on the significance of equal partnerships in co-produced research and the challenges and rewards of this collaborative approach. •Dr Rosie Ashworth: A researcher who leads patient and public involvement for the NRS Neuroprogressive and Dementia Network in Scotland. Rosie discusses the importance of involving those with lived experience in research to enrich the quality and relevance of scientific findings. •Winnie Henry: A retired psychotherapist who cared for her husband with vascular dementia. Winnie provides a personal perspective on the value of co-production, emphasising empathy and the importance of ensuring that carers' voices are heard in research. •Mike Parish: A retired firefighter who became a carer for his husband, who had progressive supranuclear palsy. Mike highlights the importance of representing diverse experiences and backgrounds in dementia research to ensure all voices are considered. •David Ross: A retired engineer who cared for his wife with frontotemporal dementia. David speaks about his journey into co-production, driven by a desire to understand more about dementia and contribute to meaningful research that reflects the realities faced by carers. -- Essential links / resources mentioned in the show: NHS England Co-production resource toolkit https://www.england.nhs.uk/publication/co-production-resource-toolkit/ Co-Production Collective https://www.coproductioncollective.co.uk/ The Dementia Enquirers Gold Standards for Co-Research https://dementiaenquirers.org.uk/wp-content/uploads/2023/02/gold-standard-for-co-research.pdf DEEP Network - A Story of Co-Production https://www.dementiavoices.org.uk/wp-content/uploads/2020/07/A-story-of-co-production-%E2%80%93-The-Right-to-a-Grand-Day-Out.pdf -- Together, these guests provide valuable insights into the process and benefits of co-produced research, offering practical tips for researchers looking to adopt this approach. Tune in to learn more about how prioritising people can transform the way we approach dementia research. -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.x.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://www.bsky.app/profile/dementiaresearcher.bsky.social
Listening & Supporting Dementia Researchers
19-08-2024
Listening & Supporting Dementia Researchers
In this episode of the Dementia Researcher Podcast, we discuss the challenges and support needs of early career dementia researchers (ECRs) across Europe. Our discussion centres on a recent study titled Supporting Early Career Dementia Researchers: Identifying Support Needs and Ways Forward via a European Study. The study sheds light on the unique difficulties faced by ECRs and offers practical recommendations to enhance professional journeys. -- Speakers: 🔹Adam Smith: Programme Director for Dementia Researcher and today's guest host. 🔹Dr Charlèss Dupont: A postdoctoral researcher at Freie University in Brussels with a background in nursing and communication. Charlès's work primarily focuses on communication and palliative care in dementia. 🔹Dr Pascale Heins: With a background in occupational therapy, Dr. Heins works at Maastricht University, where her research explores ways to support social life in people with dementia. 🔹Dr Sara Laureen Bartles: A postdoctoral researcher at Karolinska Institutet in Stockholm and Maastricht University, Sarah's research spans chronic conditions management, including dementia. -- Key Takeaways: 🔹Funding and Career Support: The study identifies a significant need for better financial support mechanisms, particularly in the transition from PhD to postdoctoral roles. 🔹Work-Life Balance: The pressures of academia often lead to an unhealthy work-life balance, with expectations set by supervisors. The study calls for more proactive support from institutions. 🔹Mentoring and Training: The importance of mentoring and training, both within academia and for careers outside of it, is emphasised as a way to better prepare researchers for diverse career paths. 🔹Dissemination: There is a need for improved dissemination strategies, ensuring that research findings reach a broader audience, including those directly affected by dementia. Tune-in as we explore these critical issues and discuss actionable solutions to support the current and next generation of dementia researchers. -- Essential links / resources mentioned in the show: Supporting early-career dementia researchers: Identifying support needs and ways forward via a European study - https://bit.ly/3WN1yju How are early-career dementia researchers considered and supported on a national level by dementia plans and organizations? An overview of global policy approaches - https://bit.ly/3YMxrLq ISTAART and University College London survey turns a spotlight on early career researcher life and challenges - https://bit.ly/4dMmoWK Join ISTAART - istaart.alz.org Pascal's PhD Defence - https://www.youtube.com/watch?v=CDjURgVH6YM -- Full biographies on all our guests and a transcript can be found on our website: https://www.dementiaresearcher.nihr.ac.uk -- Like what you see? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to listen rather than listen, you’ll find an audio version of this podcast with a transcript on our website. -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher https://bsky.app/profile/dementiaresearcher.bsky.social
AAIC Day Four 2024
31-07-2024
AAIC Day Four 2024
In this podcast we share a few selected highlights from the last day of the Alzheimer’s Association International Conference (AAIC) taking place in Philadelphia and Online, 28th July to 1st August. Quang Tran, Science Communications Officer for Alzheimer's Research UK, guest hosts the show with expert panelists: Dr Shea Andrews, Assistant Professor at University of California San Francisco working on Genetic Epidemiology of Alzheimer’s disease. Dr Joe Butler, NIHR ARC Research Fellow at University of Sunderland, interested in using techniques and paradigms from experimental psychology to learn about brain health. Roberto A. Guzmán Hernández, ISTAART Ambassador, Graduate Research Assistant and PhD Student at Temple University working on the effects of aggregated tau on endothelial and cerebrovascular dysfunction -- The AAIC brings together distinguished basic scientists, clinical researchers, early career investigators, clinicians and the care research community at the largest and most influential international conference on dementia science. They share theories and breakthroughs while exploring opportunities to accelerate work and elevate careers. Main plenary talks from the day included Michael Weiner 'ADNI: Two Decades Of Impact And The Path Forward', Reisa Sperling ' Preclinical Alzheimer’s Disease'. Today was also the first AAIC For ALL, a new format with talks for professional from Jeffrey Cummings on the Therapeutic Landscape, Heather Whitson on The Role Of Blood Tests In Diagnosis And Treatment, Clifford Jack on Criteria For Diagnosis And Staging, Monica Rivera-Mindt on Health Equity And Risk Reduction and Katherine Possin on Dementia Care. Talks for a lay audience from Edward B. Lee on Brain Donation: The Gift Of Knowledge, Hussein Zalzale on The Many Faces Of Alzheimer’s Dementia, Subtypes And Unique Features, Dawn Mechanic-Hamilton on How Can We Improve Cognitive Testing? The Answer May Be In The Palm Of Your Hand, Cerise Elliot on Building Inclusive Alzheimer’s And Related Dementias Research Studies, Wiesje van der Flier on 'Risk Reduction', Jonathan Schott on 'Diagnosis And Treatment', Nancy Hodgson on 'Dementia Care', Ozioma Okonkwo on 'Health Equity'. #AAIC24 -- Find more information on our guests, and a full transcript of this podcast on our website at: www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.
AAIC Day Three 2024
31-07-2024
AAIC Day Three 2024
In this podcast we share a few selected highlights from the fourth day of the Alzheimer’s Association International Conference (AAIC) taking place in Philadelphia and Online, 28th July to 1st August. Dr Amanda Heslegrave, Principle Research Fellow at University College London, hosts the show with special guests: Dr Darina Petrovsky, Assistant Professor at Duke University Dr Emily Ho, Assistant Professor at Northwestern University Meenakshi Menon, ISTAART Ambassador and incoming PhD student in Cognitive Sciences at Georgia State University The AAIC brings together distinguished basic scientists, clinical researchers, early career investigators, clinicians and the care research community at the largest and most influential international conference on dementia science. They share theories and breakthroughs while exploring opportunities to accelerate work and elevate careers. Main plenary talks from the day included Tara Spires-Jones presenting on 'Synaptic Oligomeric Tau In Alzheimer’s Disease — A Potential Culprit In The Spread Of Tau Pathology Through The Brain ', Ricardo F. Allegri on 'Dementia Research In Low- And Middle-Income Countries: Initiatives That Seize Opportunities, Overcome Challenges And Build Capacity'. #AAIC24 -- Find more information on our guests, and a full transcript of this podcast on our website at: www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.
AAIC Day One 2024
30-07-2024
AAIC Day One 2024
In this podcast we share a few selected highlights from the first two days of the Alzheimer’s Association International Conference (AAIC) taking place in Philadelphia and Online, 28th July to 1st August. Dr Francesca Farina hosts the show with special guests: Dr Annalise Rahman-Filipiak, Assistant Professor, Clinical Neuropsychologist at University of Michigan Dr Tamlyn Watermeyer, NIHR / Alzheimer’s Society Dem Comm Fellow at Northumbria University and University of Edinburgh working on cognition and brain health. Dr Merci Best, Research Fellow at the University of Michigan's Paulson Lab, studying the molecular mechanisms of tau-mediated neurodegeneration The AAIC brings together distinguished basic scientists, clinical researchers, early career investigators, clinicians and the care research community at the largest and most influential international conference on dementia science. They share theories and breakthroughs while exploring opportunities to accelerate work and elevate careers. Main plenary talks from the day included Edward B. Lee presenting 'Neuropathology In A Multidisciplinary Age', Timothy Miller on 'Antisense Oligonucleotide Therapeutics For Neurodegenerative Diseases', Henne Holstege delivering a talk titled 'From Longevity To Vulnerability: Genomic Pathways Underlying Cognitive Health In Centenarians And Neurodegenerative Disease'. #AAIC24 @alzassociation -- Find more information on our guests, and a full transcript of this podcast on our website at: www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.
ISTAART Relay Podcast - Nonpharmacological Interventions PIA
19-07-2024
ISTAART Relay Podcast - Nonpharmacological Interventions PIA
Welcome to the last show in this season of the ISTAART PIA Relay Podcast, presented by Dementia Researcher. In our final episode, we come full circle with Dr Keir Yong, Senior Research Fellow at UCL's Dementia Research Centre, speaking with Professor Arlene Astell, Chair of the Non-Pharmacological Interventions PIA. -- Professor Astell discusses her role as a Professor of Cyber Psychology at Northumbria University and Director of the Dementia Ageing Technology Engagement Lab at the University of Toronto. She offers a comprehensive look into her journey into dementia research, sparked by early interactions with individuals living with dementia, and her commitment to understanding and mitigating the cognitive and behavioural challenges they face. -- Gain insights into the innovative projects led by Professor Astell, including the development of touchscreen computer systems designed to support conversation for people with dementia. How the significance of lifestyle interventions, such as nutrition and physical activity, and the emerging potential of neuromodulation can play a role in reducing dementia risk. -- The conversation also highlights the broader implications of non-pharmacological interventions, the challenges in implementing these approaches within health systems, and the importance of influencing public health policy to ensure wider adoption – and the role that the Non-Pharmacological Interventions PIA can play in fostering collaboration. -- The Alzheimer’s Association International Society to Advance Alzheimer’s Research and Treatment (ISTAART) convenes the global Alzheimer’s and dementia science community. Members share knowledge, fuel collaboration and advance research to find more effective ways to detect, treat and prevent Alzheimer’s and other dementias. Professional Interest Areas (PIA) are an assembly of ISTAART members with common subspecialties or interests. -- There are currently 30 PIAs covering a wide range of interests and fields, from the PIA to Elevate Early Career Researchers to Biofluid Based Biomarkers and everything in between. To sign-up to ISTAART and a PIA visit: http://www.istaart.alz.org - Note: ISTAART Membership is free for students worldwide, and for researchers of all levels based in Low- and Middle-Income Countries. -- To book your place at this year’s AAIC (In-person and online) visit: http://www.aaic.alz.org -- You can also enjoy this show as a video on our YouTube Channel at: https://youtu.be/fF6oDHK_iP4 -- Find more information on our guests, and a full transcript of this podcast on our website at: https://www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.
ISTAART Relay Podcast - Atypical Alzheimer's Disease PIA
18-07-2024
ISTAART Relay Podcast - Atypical Alzheimer's Disease PIA
Join us for another episode of the ISTAART Relay Podcast brought to you by Dementia Researcher. We’re releasing one of these shows each week in the build up to the AAIC, which this year starts on the 28th July. In this episode, Dr Diana Karamacoska takes over the hot seat to interview Dr Keir Yong, a Senior Research Fellow at University College London, about the intricacies of Atypical Alzheimer's Disease, and the work of the Atypical Alzheimer's Disease PIA. Discover how posterior cortical atrophy (PCA), a less common variant of Alzheimer’s, impacts patients' lives and the innovative research aiming to improve diagnosis and treatment. Get insights into the diagnostic challenges, the role of biomarkers, and the essential interdisciplinary collaborations driving advancements in this field. Don't miss this deep dive into Keir’s work, hot topics in the field, and how their PIA is making a difference. -- The Alzheimer’s Association International Society to Advance Alzheimer’s Research and Treatment (ISTAART) convenes the global Alzheimer’s and dementia science community. Members share knowledge, fuel collaboration and advance research to find more effective ways to detect, treat and prevent Alzheimer’s and other dementias. Professional Interest Areas (PIA) are an assembly of ISTAART members with common subspecialties or interests. -- There are currently 30 PIAs covering a wide range of interests and fields, from the PIA to Elevate Early Career Researchers to Biofluid Based Biomarkers and everything in between. To sign-up to ISTAART and a PIA visit: http://www.istaart.alz.org. Note: ISTAART Membership is free for students worldwide, and for researchers of all levels based in Low- and Middle-Income Countries. -- To book your place at this year’s AAIC (In-person and online) visit: http://www.aaic.alz.org -- You can also enjoy this show as a video on our YouTube Channel at: https://youtu.be/53wt10WyURI -- Find more information on our guests, and a full transcript of this podcast on our website at: www.dementiaresearcher.nihr.ac.uk/podcast -- The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of NIHR Dementia Researchers, PIA membership, ISTAART or the Alzheimer's Association.